Through the Unthinkable, by Rose Cahalan was a piece about pediatric palliative care written for the Alcalde, The Official Publication of the Texas Exes. The article follows Rachel Carnahan, a social worker on the pediatric palliative team at Dell Children’s Medical Center in Austin. Rachel was Mathaus’ palliative care social worker. We are grateful to Rachel for the exceptional care she gave our Mathaus and our entire family.
Here is an excerpt from the article:
“The word “palliative” comes from the Latin pallium, meaning “cloak.” A cloak is a fitting image for a model of health care focused on encompassing the whole person, not just their illness. Palliative care is often confused with hospice—a narrower subtype of palliative care focused on the end of life—but increasingly, it isn’t only for people who have a terminal prognosis. The basic idea is that a team of doctors, nurses, and social workers collaborates to alleviate pain and stress. Their top priority is to improve quality of life, whether or not a cure is possible.”
“Palliative care is not about death,” Jones tells them. “It’s more about living. In pediatric palliative care we look for ways to reduce suffering and allow kids and families to live life to the fullest.”
To read the article in it entirety click the link below:
I was asked to share a parents perspective on pediatric palliative care. I was glad to share Mathaus’ life and talk about the importance palliative care was to our family. To view the video playing on the Long Horn Network click below: